Know the basics
What is hemophilia?
Hemophilia is a rare disorder in which your blood doesn’t clot normally, it include 2 forms:
- Hemophilia A (classic hemophilia, or factor VIII deficiency)
- Hemophilia B (Christmas disease, or factor IX deficiency)
Factor VIII and factor IX are important proteins in the blood for clotting. Therefore, when these factors decreased too low will cause hemophilia. If you have hemophilia, you may bleed for a longer time after an injury than you would if your blood clotted normally. Small cuts usually aren’t much of a problem. The greater health concern is deep bleeding inside your body, especially in your knees, ankles and elbows. That internal bleeding can damage your organs and tissues, and may be life-threatening.
How common is hemophilia?
This is a rare genetic disease and usually occurs in men. You can minimize the chance of having hernias by reducing your risk factors. Please discuss with your doctor for further information.
Know the symptoms
What are the symptoms of hemophilia?
Signs and symptoms of hemophilia vary, depending on your level of clotting factors.
Signs and symptoms of spontaneous bleeding include:
- Unexplained and excessive bleeding from cuts or injuries, or after surgery or dental work;
- Unexplained bleeding;
- Many large or deep bruises;
- Unusual bleeding after vaccinations;
- Pain, swelling or tightness in your joints;
- Blood in your urine or stool.
There may be some signs or symptoms not listed above. If you have any concerns about a symptom, please consult your doctor.
When should I see my doctor?
If your child bruises easily, see your doctor. If your child has heavy bleeding that can’t be stopped after an injury, seek emergency medical care.
If you’re pregnant or considering pregnancy, and have a family history of hemophilia, talk to your doctor. You may be referred to a specialist in medical genetics or bleeding disorders, who can help you determine if you are a carrier of hemophilia. If you are a carrier, it’s possible to determine during pregnancy if the fetus is affected by hemophilia.
Know the causes
What causes hemophilia?
The disease occurs when factor VIII or IX is deficient. Therefore, when surgery or wounds appear, patients are very difficult to stop the bleeding because their body does not produce enough the protein to blood clotting. In most case, hemophilia is genetically passed to children, usually makes, by their mother. It’s called a sex linked disorder. Women usually have no symptoms because they have two X chromosomes, so one can be affected but the other one has normal genes. Men have only one X chromosome, so if that one is affected, hemophilia results.
Know the risk factors
What increases my risk for hemophilia?
If you have family members who have genetic blood clotting disorder, you will also be at risk for this disease. Not having risk factors does not mean you can not get hamstring strians. These factors are for reference only. You should consult your doctor for more details.
Understand the diagnosis & treatment
The information provided is not a substitute for any medical advice. ALWAYS consult with your doctor for more information.
How is hemophilia diagnosed?
Most often, hemophilia is diagnosed after a person has an abnormal bleeding episode. It can also be diagnosed by a blood test done to detect factor VIII or factor X deficiency.
How is hemophilia treated?
Treatment involves replacing blood factors or using medicine. To prevent damage, bleeding into a muscle or joint must be stopped as soon as possible. If the condition becomes more severe, the doctor will use clotting factors. Drug as desmopressin or aminocaproic ait may be used in mild cases. In addition, received blood should be tests careful to avoid suffering received infectious diseases like HIV …
Lifestyle changes & home remedies
What are some lifestyle changes or home remedies that can help me manage hemophilia?
The following lifestyles and home remedies might help you cope with hemophilia :
- Follow your doctor’s diraction about what to do if you bleed or are injured
- See your dentist twice yearly
- Exercise but avoid contact sport such as football. Swimming is ok
- Avoid intramuscular injection
- Accident-proof your home. Wear a seatbelt and drive safely.
If you have any questions, please consult with your doctor to better understand the best solution for you.
Hello Health Group does not provide medical advice, diagnosis or treatment.
Review Date: May 30, 2016 | Last Modified: December 9, 2019
Ferri, Fred. Ferri’s Netter Patient Advisor. Philadelphia, PA: Saunders / Elsevier, 2012. Print edition, page 451
Porter, R. S., Kaplan, J. L., Homeier, B. P., & Albert, R. K. (2009). The Merck manual homehealth handbook. Whitehouse Station, NJ, Merck Research Laboratories. Print edition, page 1044
Hemophilia. http://www.mayoclinic.org/diseases-conditions/hemophilia/basics/definition/con-20029824. Accessed July 30, 2016.
Hemophilia. https://www.nlm.nih.gov/medlineplus/ency/article/000537.htm. Accessed July 30, 2016.