Is your spouse diagnosed with epilepsy? Is your spouse anxious, depressed or disappointed about themselves? Do you want to be supportive but you aren’t sure what to do and how to help? Starting with these steps, you can make it easier to take back control.
Understanding what your spouse is going through, what they feel is important for you to support them properly. You should normalize conversation about epilepsy and seizures, this can help your loved one feel more comfortable talking about their concerns and fears. When communicating with them, you shouldn’t hide your own feelings as well. If you think that witnessing your spouse having a seizures is scary, don’t be afraid of talking about it. Be honest with your spouse, then they will be honest with you.
Tell your spouse to avoid alcohol
Although it is your spouse’s personal choice to drink alcohol, you should encourage them to avoid it by telling them what alcohol can affect their seizures. It is usually recommended that people with epilepsy have no more than 1-2 units of alcohol per day. However, it is better if your spouse can avoid them as much as possible. In some cases, alcohol can make the side effects of seizure drugs become worse, or medications may increase the effects of alcohol. Morever, alcohol can trigger seizures for some people, alcohol can also disrupt sleep patterns, which can make seizures more likely.
Look after yourself
You can find that supporting or caring for your spouse role rewarding, but at some points, you can feel that being a carer can be exhausting. It is normal if you experiene emotions such as guilt, resentment, anger, anxiety, or helplessness. Although you wish to support your spouse as much as possible, you should not give up your income and career prospects. You need breaks to yourself to support your spouse better, so the focus is not always on your spouse. You still should care for your needs and wishes. It can be very important to look after yourself, and have some time to yourself.
Offer to go to important medical appointments
It is suggested that you should ask to come with your loved one if they have important medical appointments. Your spouse may want some extra support or someone to take notes about medical procedures or other important topics, so you should recommend it first. Morever, it is a chance for you to know their’s illness condition and you can help them make decisions for treatment they may need. In addition, it is the fact that your spouse can’t remember what happens during a seizure, so you should try to communicate that information to the physician.
Carry important phone numbers with you
It is necessary that you always carry important phone numbers with you. They are specific doctors, local hospitals, or your relatives whose phone numbers is needed in your bag. You need to make sure that you are always able to contact the people who you may need or want informed of any given situation.
If your spouse is living with seizures, not only your spouse are affected but also yourself as a partner and your relationship as well. In fact, seizures is considered as a physical symptom that is unpredictable. But if you can support your spouse with the disease in the right way, you can protect your spouse better and also protect your relationship then.
Hello Health Group does not provide medical advice, diagnosis or treatment.
Review Date: February 13, 2017 | Last Modified: February 13, 2017
leisure time and epilepsy. https://www.epilepsysociety.org.uk/leisure-time-and-epilepsy#.Vzctkfl97Dc. Accessed February 8, 2017.
caring for someone with epilepsy. https://www.epilepsysociety.org.uk/caring-someone-epilepsy#.VzgGcvl97Dd. Accessed February 8, 2017.